u/hyukswhale

19F here! I've posted a while ago about my diagnosis and I've just been staged, stage 2BX unfavourable classical hodgkin's lymphoma, because of a mediastinal mass, I was supposed to be on ABVD but the doctor said i can't be taking Bleomycin due to "severe pulmonary restriction", i think it might be because of the mediastinal mass? I'm not sure. Anyway, I'm supposed to be on Nivo-AVD for 4 cycles instead but i still didn't start.

Before i ask about Nivo-AVD, i have shortness of breath and fast heart rate and i get really easily fatigued, like i went up two flights of stairs and i was breathing heavily and my heart rate got extremely fast, also i was out and walked for a like less than 10 minutes and i was again really fatigued and had shortness of breath and fast heart rate, also i sometimes find myself holding my breath for a few seconds for absolutely no reason is this normal? Or is this because of the mediastinal mass? Its size is 140 × 91 x 135 mm, and should i mention that to my doctor like would it interfere with the treatment?

Now, If someone had the same treatment, Nivo-AVD, can you please tell me how was your experience? Did all your hair fall out? What about eyebrows and lashes? Did you lose weight? Were you extremely fatigued to the point where you couldn't do anything? Like going to classes/work or studying?

Also please can someone tell me if 4 cycles mean like 4 rounds or 8 rounds? Cuz when I tried to google it, it said that cycles and rounds are used interchangeably but it also said that a cycle is 2 rounds??

I just got diagnosed with hodgkin's lymphoma through a biopsy that used immunophenotyping, I'm 19F, in my second year of college, I'm terrified, i heard it's the "easiest form of cancer" but I'm still scared, i didn't have any symptoms but i had a swollen lymph node in my neck, i don't have night sweats or fevers, but I've had really bad itching on my legs for a while now

I'm supposed to be meeting my doctor tomorrow and i think he'll ask for a PET scan to determine the stage, I'm scared it'll be advanced, i don't want it to interfere with my studies or my life, i literally have my finals in two weeks.

On top of that, i have a "Thyroid enlargement, consistent with Follicular Neoplasm (Bethesda IV)." I don't exactly know what it means but my doctor said it'll probably require surgery first, i don't want him to rush the surgery so we can start with chemo, I'm terrified but I also lowkey want to not delay anything so i can be done with it as fast as possible

I just got diagnosed with hodgkin's lymphoma through a biopsy that used immunophenotyping, I'm 19, in my second year of college, I'm terrified, i heard it's the "easiest form of cancer" but I'm still scared, i didn't have any symptoms but i had a swollen lymph node in my neck, i don't have night sweats or fevers, but I've had really bad itching on my legs for a while now

I'm supposed to be meeting my doctor tomorrow and i think he'll ask for a PET scan to determine the stage, I'm scared it'll be advanced, i don't want it to interfere with my studies or my life, i literally have my finals in two weeks.

On top of that, i have a "Thyroid enlargement, consistent with Follicular Neoplasm (Bethesda IV)." I don't exactly know what it means but my doctor said it'll probably require surgery first, i don't want him to rush the surgery so we can start with chemo, I'm terrified.