u/i_am_not_so_unique

Hi, got diagnosed with cluster headaches in emergency ward (after a couple of dreadful visits).

Sumatriptan helped, and pain timing - three hours of pain four times per day clues towards them.

However. Some symptoms do not match with classic definition of cluster headaches.

What other symptoms of clusters do you have?

I have a really strong vertigo together with pain + my corner of the mouth on affected side periodically gets numb even without pain, and general body sensations on affected side are off.

Plus, my main cluster episodes seems gone, but I still have a weird residual throbbing pain above my ear - it was better after episodes, but came back recently and doesn't go away.

My ENT suspects SCDS, but not all symptoms match it either. I also have a history of neck issues, and wonder if this pain can be cervicogenic.

I am currently waiting for results of CT scans and MRI, and for my next doc appointment, but because of holidays season everything is much slower where I live, but the pain and fear is real and now.

EW checked me, so I doubt my condition is life-threatening and gladly my motor functions seem unaffected, but sensations surrounding my pain episodes are so weird.

How do you guys doing in-between pain episodes?

Is it normal for you, or do you have all sorts of residual pains and also barely keep it together?

Or is it normal for you?

Thanks in advance to whoever sees that. We share the same challenges.

I occasionally had lucid dreams, but inducing them was really hard for me for more than a decade.

Yesterday saw a post here about FILD, and liked the simplicity of the method.

It worked from the second attempt. And LD was one of the most realistic I ever had.

Transition was absolutely smooth and without any struggle, as I usually had with other techniques.

I was "playing piano" with my fingers and was thinking, well, it doesn't work as usual, but I have to do a check still.

I did a check by pinching my nose and was so surprised that I could breath in, lol.

To _Bread____ who posted originally - thank you!