Has anyone gone through autologous stem cell transplant during remission? I have some doubts
Hey all, I hope you're doing well. I am reposting this post as i didn't get any response on my previous post and I am stressed out and looking out for advice.
I went into remission last November, completed radiation in Jan. My 6 month PET CT also came to be perfectly fine.
Now my onco says that the variant i have. (DLBCL anaplastic variant, I am also retropositive, hiv 1 but i am under control now and it's undetectable) is supposed to be a aggressive one with a higher chance of relapse, so is suggesting to go to ASCT now.
My question is, is it worth it? Considering he didn't have much data to prove it will actually reduce the risk of relapse, and we can't be sure relapse won't occur after this.
I will have to take time off my work again, and in this economy i feel scared now to do that, I already am in conversations that my work is not upto the mark after what I went through, and my availability at my work should improve.
Third, I feel I am not a statistic, I am just 26, I feel healthy, i live with a very healthy lifestyle and eat healthy, and exercise whenever I can. I don't feel a reason to be scared of relapse when I am doing everything in my position to prevent that.
So, what do you guys think? Should i just get it done to be preventive? Or have you felt this process was not that useful?
Thanks