I FINALLY MADE IT TO MY FIRST INFUSION!!!!! AFTER THE WORST SUMMER OF MY LIFE I SEE THE LIGHT AT THE END OF THE TUNNEL FINALLY! SAVE ME INFLIXIMAB SAVE ME! As excited as I am I’m still a little nervous for some reason, my biggest hope is it works fast because I’m starting to forget what it felt like to ever feel normal lol
I think the pred makes falling asleep already difficult but waking up every hour to sprint to the bathroom is the worst symptom imo. Can never recover or be productive because I can never sleep!
I hate to be all gloom and doom as I always considered myself a big silver lining person but after being diagnosed in April I feel like I’ve gone through all the stages of grief of who I was and who I can still be now kinda. I know it’s probably only because I haven’t been out of this severe flare yet and haven’t got to start any biologics but still it’s been so exhausting physically and mentally . I don’t see how I’m supposed to continue law school and be a lawyer and get back into the gym and hike and travel and play for my college teams anymore. I tell myself I can get into remission and live normally but it’s just so hard to see that light at the end of the tunnel right now when it’s so unbelievably exhausting just to walk to my bathroom the last 2 weeks and I only wake up just to lay down all day because I physically can’t do much else right now. I’ve always been such an active person that I don’t even know who I am now and it makes me feel like I’m just being lazy in a way but I truly have never felt so sapped all the way to core. I wake up tired, I go to bed tired , and repeat. School starts the end of August and I’m scared I’m not gonna make it back to any reasonable baseline to attend this semester. I don’t know I think I just needed to vent and put it all out there ! Praying insurance lets me start remicade soon and that it works quick .
So I was decently diagnosed in May and was actually in remission almost instantly after getting on Mesalamine until about 2 and a half weeks ago when I missed 3 non consecutive days of my meds . Well since I was in a flare for a minute it started getting pretty bad with seeing a lot of blood recently so I went to the er yesterday and after running my labs and getting a CT they decided to send me home with the whole pharmacy now it feels like with 3 meds that they didn’t even tell me what they do or are for so i figured I could ask here. They have me taking Ciprofloxacin, prednisone and Metronidazole along with continuing my Mesalamine. With the new pills added I have to take 10 pills a day now. I feel like an 80 year old in a 24 year olds body lol