Folliculitis decalvans - London dermatologist recommendations and others’ treatment experience
I’ve had folliculitis decalvans for several years and was diagnosed by a dermatologist in 2023.
I was treated with rifampicin and clindamycin, but after treatment it returned. Since then I’ve mainly been managing flare-ups myself.
It’s mostly at the nape of my neck, where I get recurrent inflamed bumps, redness and l scarring hair loss from the inflammation.
At the moment I’m using BP 10% wash during flares and also Hibiclens
The BP / Hibiclens definitely helps calm things down, but I know it isn’t a long-term treatment
A few questions:
• Has anyone found a treatment that worked after rifampicin/clindamycin didn’t?
• Has anyone had success with isotretinoin or other medications?
• Once your foliculitis was under control, did your hair loss stop progressing?
• Can anyone recommend a dermatologist in London (NHS or private) with a particular interest in folliculitis decalvans or scarring alopecia?
This has become my biggest insecurity and I feel like the flare ups have gotten worse in the heat, so I’d really appreciate hearing about other people’s experiences and any recommendations.
Thanks in advance.