Epilepsy has ruined my life
I have had epilepsy my whole life. But in my 20s it has gotten worse. Bc of it I have been living in my parents house for 6 years because I can’t drive anywhere, and it’s really frustrating because it feels like the condition is taking over my life. I used to have it just on one side, but now it’s on both. When I was only on 3 meds we had a take home eeg and we found out that I had 5 seizures during the night, I also got up in the middle of the night, fell down the stairs and hit my head against the wall. I have seizures every 6 months and my neurologist says I probably won’t be able to drive in my life and I have drug resistant epilepsy.
I now take 4 types of meds and still have seizures every 6 months. In 24 hours I also have to take 9 pills to control my epilepsy, even though my seizures are now mild, the meds make me so incredibly tired. It’s to the point I am only up for 5 hours a day and I don’t even get a good nights sleep. My neurologist said if I got off my meds I would probably have seizures every day and if I got surgery I would still probably have seizures.
I was supposed to leave for France to go to school , but my parents are making me post pone it bc I can’t stay up at all. I’m so tired of this condition controlling my life and I don’t know what to do. I want to live my life! Because I can’t work right now and can’t drive I am signing up on disability, but I don’t know how I’m supposed to live on that low of money. Lastly, because I have epilepsy on both sides my seizures always look different. -Frustrated