u/jumricyoueli

Any encouraging stories of people going to a second transplant after few relapses? My son is 4 years old and is fighting T cell All that has an aggressive mutation. He relapsed in bone marrow and CNS just 4 months post his first transplant. We went to China for CAR T and he relapsed in the CNS only one month post CAR T . He went in remission again and he is now at day 8+ post his second transplant. The relapse ghost is hunting me , i need motivation 😭

Maybe some of you have been seeing my post about my 4 year old son who has an aggressive T Cell ALL . He was diagnosed with T Cell ALL on December 2024 , he had his first relapse during consolidation and was isolated in the CNS. Had his haplo STC (Stem Cell Transplant) on September 2025 , he relapsed in both bone marrow and CNS just 4 months post transplant (January 6 2026). Until then we decided to go do CAR T in China, we are now here and it has been 1 month post CAR T , his bone marrow is MRD negative but his CNS turned out to have leukemia again , im sick of this disease, doctors said its a tough one and even gave us the option to stop treatment , not because they don’t have options but because they said treatment will be very intense, but we are not stopping. Im mad at this disease how it always comes back and worst thing it always comes early. He is scheduled for a second transplant in one month.

Any similar stories but encouraging 😓