u/kclare2005

▲ 2 r/Endo

Symptoms are getting worse and I need advice

Hey all, I need some advice on what to do or what happened to you guys or what helped. I was diagnosed with endometriosis October last year by surgery and thing is they only did ablation which sucked... Pains went for 5 months I felt great and thought that was it then 5 months later around march this year the annoying pelvic pain I had all came back all day everyday the pain was there. But now about June/ July time the pains are getting worse and my legs are always crampy and so is my lower back. Now I'm always constipated too I'm relying on dulcolax, fybogel and movicol BC if I don't I can't go for days and it's really draining... I have a Gynaecology appointment 16th BC they wanna send me to a fertility clinic elsewhere BC they said they can't do anything anymore as they did all the ultrasounds, MRIs and surgery and everything is just getting worse and they put me on the mirena when I had my surgery and I just haven't had periods which is normal I guess but I just don't want these annoying symptoms BC it's draining and it's taking everything away. My course, after hours activities and just life in general... I tried everything changing diets, medication and nothings working. It feels like something is always coming out of my private like discharge or something and I keep checking in case it's blood but it's not and I get confused. I really need advice and what to do because it's really draining... Trying so hard to manage but it's so hard when nothing you try works...

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u/kclare2005 — 6 hours ago
▲ 2 r/Endo

I need advice... I got a Mirena IUD in last October now 6 months in so it's starting to work. Thing is I'm still flaring even after a bowel movement and such I start flaring for nothing. Only perk is that I have no periods. Bad thing is that with no libido I don't really wanna do anything physically with my partner and it worries me but I'm lucky he's understanding and I am grateful for him but this whole non physical thing only started when the mirena started working... I am wondering on getting it removed but I would get all my pains back the clotting insanely the blood loss everything but I'd get all my feelings for everything back... So I'm a decision of wondering which is more important being in pain or everything back because not feeling things ruins me mentally but pains does the same so it's a lose lose situation and I'm mentally numb and I really need advice from people that have had birth control that made you feel like this because I don't wanna regret anything I just wanna have something that will work because the pill rejected me and bled for a straight month... I really need advice...

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u/kclare2005 — 2 months ago