Prednisone has me superhuman (aka “normal”)
I’ve been taking mesalamine for a few years to no avail, my symptoms are daily and I have a few big flares a year. Recently, I’ve been flaring & the only way they were able to control it was prednisone, which I’ve been on for about 2 months now. I’ve been going through the process to get approved for Remicade, which is still not quiiiite approved, but should be soon. While on prednisone, I’ve felt the most normal I’ve felt in years; regular bowel movements, no debilitating fatigue, not even as many headaches as normal. I’ve been able to be social, active, and present in my life, which feels so exhilarating.
They’re tapering my steroids down and I’m scared I won’t have this kind of relief with Remicade. Obviously there’s no way to know, and I also can’t stay on steroids, but it’s hard to feel normal and know I might not feel that again. I’m also starting a new job, where I’ll have to be in office, and that’s adding to the uncertainty. Any advice, personal anecdotes, or kind words are appreciated!