u/leo-maximus

Hi all, I'm 39m from the UK . I have developed foot drop etc the last few months and following a referral with an ECG and Nerve conduction study with generalised sensory and motor polyneuropathy showing a predominantly axonal loss patten , pointing to hereditary neuropathy I have been told i.e. CMT

I have since been on the waiting list to see a neurologist since June for more investigations i.e. genetic testing for CMT etc.

It makes sense now why I wear braces etc even before this happened. To be honest it's not been a surprise but still coming to terms with my body changes as my symptoms are getting worse. For example I cannot drive my manual car anymore and now need to switch to automatic.

I do not want to wait nearly a year to see a neurologist so I have been thinking of going private but the costs for genetic testing ranges from £2.5 to 3.5k .

Is there a route to go private to see a neurologist then get the test done on the NHS or reasonably priced testing or free tests via studies etc ?

Any advice would be greatly appreciated.

Thanks in advance.

The captain and two crew members have been charged with murder. What has shocked and saddened me is the fragrant racism online . From the N word to other comments that it's attributed to their race with negative tropes (there's only one human race, but for the sake of this post to explain) .

I'm of the Guyanese dispora but love Guyana (I was back in our homeland in October). I thought and think we have progressed as a nation but it's clear that people still harbour bigoted opinions behind closed doors, that they feel free to voice online.

Unity will be the only means to true progress.

Hi all,

As a person whom is of Guyanese descent ( half Guyanese and Vincy) born and raised in England, I was wondering how life has been in terms of embracing your Guyanese heritage whilst being born abroad and if applicable like myself, no family connections.

I travelled solo to Guyana last year in October and it was a spiritual, emotional journey. For all the noise of politics, economic change etc in Guyana knowing full well the country isn't perfect, for the first time in my life travelling abroad , I felt a sense of belonging. The diversity , nature, culture of the country etc brought such joy and surprise. Guyana is such a unique country.

Compared to the UK for example there's a lot more integration between black and Indo's ( I prefer just Guyanese as one people but for the sake of this post) which is VERY rare in the UK.

I don't have any family in Guyana as they have mostly passed away (they are from Stewartville) including my father, but that won't stop me from embracing my heritage.

I've met a few Guyanese here in the UK. They all seem to have similar stories of no connection with their Guyanese side , no knowledge of the culture , history , food etc

I think in the USA there are stronger Guyanese communities whilst over here we are in fragments across the country. Moreover we are seen as a British Carribbean over here first than Guyanese, as generations of Carribbean people have lived in the UK since the 1940s with deep rich history.

It would be nice especially to hear from anywhere , UK including would be nice 🙂