Has anyone been to the mayo clinic PRP?
so i have a very complicated and long medical history starting from when i was 11 and im now 20 in june. i have severe ibs, severe endometriosis, interstitial cystitis, neuropathy, tremors, migraines, and pelvic congestion syndrome.
i am in constant pain 24/7 and have been bedbound this last year only with some help due to low dose naltrexone. i finally decided to go to the mayo clinic bc all my specialist have said i’ve exhausted all options except my urogynocologist and neurologist.
they scheduled a bunch of appointments before i even got there but my main doc visit i was expecting to be able to talk and explain everything (even thought they had all my charts from all the other hospitals) the appointment wasn’t even 20 min and she diagnosed me with chronic pain syndrome and said i have central sensitization which i had already known.
i then basically wasn’t given an option between my mom and my doc to do the PRP (pain rehab program) which is three-week program for adults. they do pain sensitization education, empirically supported psychosocial and rehabilitative self-management approaches to calm an overactive nervous system. The program goal is to promote functional improvement and quality of life. it is from 8-430 five days a week for three weeks.
this is what it says there goal is. i Was told by the guy who runs it from his own words that they aren’t allowed to talk about your symptoms and when u do they shut u down, they try to eliminate meds ( i have and now am on only meds i need), they say u have to show up even when in pain and i told him i physically cannot get out of bed sometimes. the only reason i made it to FL was bc i went to the ER two days before bc i could walk and got steroids and valium.
it sounds so physically and mentally exhausting. ik this will probably help me bc i don’t really have another plan ig except stick with the physical therapy i am doing know. i just want to know if anyone has done this program or one like this and can give me any input or what their experience was bc it seems like it will only do more harm than good tbh.
most of what i have been seeing is that they seem to push u too hard and seem to try to eliminate medication even if u don’t want it to be which i am not ok with. i try talking to my mother about this and she does not understand at all. like il show her some peoples experience and she just says “ well those people were on drugs or those people r lying or the mayo clinic is the top hospital they wont do that” and she refuses to listen anymore about it.
i just want people honest experiences and thought please