u/maczara

My mum passed away

It’s ironic, I hated seeing these posts when I was looking for help and advice through my mothers glioblastoma journey. We had Hell of a ride, 2 years and 9 months. She passed away 22 September, the day after my 27th birthday.

When the doctors told us there was nothing else to do, I knew this time that it was over. She was tired and weak. The last times we flew abroad, did treatment in turkey and Germany, and we thought it would be all right.

I feel numb. I feel weird that I don’t cry that much. I just feel severely depressed. She was my best friend. And I hate this fucking disease. I can’t believe I’m motherless. I think I’m in deep denial. I’m so sorry for anyone going through this. Good luck on your journeys. I have a lot of material and if anyone needs help, I will absolutely help.

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u/maczara — 11 days ago

I normally don’t post things like this, but I felt like I had to share in case it can help even one person.
My mom was diagnosed with grade 4 brain cancer (glioblastoma) in February 2024. Since then, she’s gone through surgery, radiation, and chemotherapy. In October 2025, the tumor came back. She had another surgery (LIT) but unfortunately it caused the tumor to spread deeper into a very difficult area of the brain.
At that point, multiple surgeons in Sweden told us there was nothing more they could do. They didn’t even want to attempt removing 50% of it and instead recommended palliative care. It honestly felt like we had run out of options.
I spent days and nights researching. Looking into studies, surgeons, anything I could find.
Eventually, we decided to go to Turkey. We went to Memorial Göztepe Hospital in Istanbul and saw Dr. Ziyal Ibrahim. It was expensive, and of course there were risks, but we felt like we had nothing to lose.
They were able to remove the entire tumor.
I’m not sharing this as any kind of promotion or because I’m affiliated in any way. I just genuinely want people to know that sometimes there are other options, even when you’re told there aren’t.
My mom has no complications from the surgery and is now about to start radiation again.
If you or someone close to you has been told that surgery isn’t possible, I just want to say: it might be worth looking into other opinions.
I know every case is different, but I hope this can give someone a bit of hope, or at least another path to explore.

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u/maczara — 5 months ago