Tapered to 10mg couple questions
so ive had SAI for 4-5 months now caused by opioids initial dose 20/5/5 HC
im kinda confused why im not dead to be fair i also have tried stopping my steroids for a couple days felt faint about day 4ish so i took my meds. i was on 12.5mg hydrocorisone when i tried this, reason i tapered down is because i felt like i was living underwater on that dose and kept missing doses and was fine yet when i was on higher doses, i could not think, had memory issues and extreme tiredness. i did try up dosing for certain things exercise, heat, etc. I just ended up suffering your textbook low/high cortisol symptoms which i was told by my doctor are alike. i tapered to 15mg to 12.5mg now i am at 10mg.
anyways where do i go from here with my endo and healthcare?
i imagine my endo is gonna flip when they hear im on 10mg but what can they do im not dead and have been more active than ever since diagnosis, ive told my gp but they didnt really care. Thing is i didnt know opioids can supress the HPA axis and was diagnosed after a blood test. After the brief "have you stopped or been on any steroids" i was sent on my way with a hydrocortisone script. its been months and ive been diagnosed with secondary AI, my ACTH was 5 with my cortisol being 28 at 9am i didnt have any "Stim test or any another test besides one cortisol and after extended hormones which seemed a lot better once i stopped taking oxycodone which is the opioid i was taking.
heres the tricky part, the oxycodone is not prescribed (good luck in the uk unless death is coming on paper) and i had about 50mg in my system during the test which i have read can cause supress the axis never mind daily before the test.
I also have been feeling really good on a morning until i take my HC?
Should i get another morning cortisol? no painkillers?
and how often do you guys see your endos?