u/mattcurtisgd

Our daughter arrived 11 weeks early – now facing a Grade 4 brain bleed

Hi everyone,

On 14th August, our little girl decided she was ready to meet us 11 weeks early, at just 29+5 weeks. It was obviously a huge shock, and my wife had to have an emergency C-section.

She’s now in the NICU, and thankfully the first five days have actually been really positive. Every time we’ve visited, the nurses and doctors have been happy with how she’s progressing, and we’ve been slowly starting to feel a little more hopeful and settled into NICU life.

However, today our consultant told us that a scan had shown a Grade 4 intraventricular brain bleed on the left side of her brain.

Obviously, we’re absolutely terrified. We’ve been told that they’ll monitor her very closely and that she’ll have regular scans to see how the bleed develops, but right now there’s obviously a lot of uncertainty and a lot of questions going through our heads.

I was wondering if anyone here has been through something similar, particularly with a Grade 4 bleed? If you’re comfortable sharing, we’d really appreciate hearing about your experiences, what happened with your little one, and anything you wish you’d known at this stage.

We know every baby is different, and we’re trying our best not to look too far ahead or assume what this means for our daughter. We’re just trying to take things one day at a time.

Thank you to anyone who takes the time to read this or share their experience. ❤️

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u/mattcurtisgd — 1 day ago