Old blood test finding (20 years ago), will do another one soon.
31M with FSHD, found an old blood test showing extremely high CK levels, curious if others have had similar results
I've had FSHD for as long as I can remember, though it really started kicking in around age 16. I used to be very active, today I can no longer do none of what I used to, though I'm still independent.
Anyway, here's what I found: going through an old blood test, I noticed one result that stood out compared to normal ranges.
CK (Creatine Kinase)
Normal range: 24 – 195 UI/L
My level: 1,143 UI/L
This test was done about 20 years ago, so I'm not sure what to make of it yet. I'm planning to get a new test done and will definitely be bringing it up with a specialist.
I'm mostly posting to see if anyone else with FSHD has had similar results, or knows more about what elevated CK levels mean in this context. Would be great to discuss!
I'll share any updates if I find something useful. 😄