u/midnightsmommy

THC and PNES

Hiya, I've been living with this weird condition since I was about 14 or 15 years old, and I am currently 20. I haven't got a clear diagnosis, I was seeing specialists for years since this began under the suspicion of epilepsy - and the idea of it possibly being PNES was brought up in my last visit with the neurologist. I'm currently trying to get seen again to get closure and the proper help I need to happily live with whatever strange wiring I have in my brain. As I've got older I started to become a regular user of gods green grass. I have talked to my partner about this, but wanted to know if anyone else in this community shares these thoughts?

When I was younger my seizures were way more frequent and intense - full body convulsions that seemed like epilepsy but would last up to half an hour and I would be fully conscious the whole time (it was hell) and they'd occur at least three times a week. Since becoming a regular user, I've noticed that I only really get my seizures, which are far less intense and more of a bodily shut down with intense fear and dissociation, in clusters that come back to bite me in the ass every couple of months or so. I think that a part of this shift in intensity and frequency can be attributed to the devils lettuce? Am I silly for drawing that comparison? I started when I was 18, which is when the shift from suffering almost daily to every couple of months or so started.

When these clusters happen they sort of smoke me one after the other within the span of a few days leaving me in a state of derealisation and uncomfortableness. When this happens I've noticed that even a small amount can sort of bring me back to my 'normal' state - not feeling as disconnected and uncomfortable in my body. I have also never had an attack when the chemical is in my system.

I'm just coming on to here to see if anyone shares this sentiment with me and whether or not this is thing that is known to help? or if i am just drawing correlations from thin air. And if so whether or not going the medicinal route would be worth pursuing. On a side note this is my first time on this subreddit and I already feel so seen and not alone. This is the first time I've found community with my weird ass disorder and seeing threads on this subreddit and the comments on them just warms my heart.

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u/midnightsmommy — 1 day ago