u/mikathesir

▲ 1 r/IBD

Symptom experience of IBD? Looking for IBS advice

Hi! Looking for some advice or someone to go through how IBD affected them before they started treatment?

I'm diagnosed IBS and I know how it differs from IBD biologically, but struggling to find info on personal experience of symptom differences? Particularly when symptom lists talk about people with IBS feeling better after a bowel movement - how does someone with IBD feel?

My experience & advice question:

I've had blood tests and stool sample tests, both of which are normal for inflammation etc. but I had low B12 (now on injections and fine) and consistently low iron stores (been on prescribed supplements for years which have very slowly brought my stores up but every time I stop, it drops) which makes me think of malabsorption?

I'm still pretty fatigued despite b12 injections + ferritin supplements + thyroid medication, frequent nausea & stools are very rarely normal. Fresh blood is rare but I think this is due to hemorrhoids or perhaps a fissure at times when there's been more blood. Urgency is very frequent and intense.

Pain isnt bad but I've had this for so long now (over a decade) I'm not sure if I know what normal is. No weight loss, some appetite issues but I have anxiety which can explain a lot of symptoms.

With my blood tests and stool samples being normal, should I even push for further testing? Is there anything else to look at before jumping to colonoscopy? Which I dont want to go through if its unlikely to find anything

Thanks for reading. I'm just struggling and need some input before I go back to the GP again

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u/mikathesir — 11 days ago