Is a real cure even close or are we still fucked I don’t want ‘treatment’ I want this shit eradicated from my body completely. Feels like the researchers are just sitting around with their dicks in their hands jerking each other off n stroking their egos while the rest of us rot.
ok so i’ve had nf1 my whole life right and like everyone always makes me feel limited bc of it but i’ve always loved boxing and i’m actually considering pursuing it for real like first ever boxer with nf1 type shit 😭 i just wanna prove that this condition doesn’t define what ur capable of?? i know there’s extra risks that come with nf1 that most fighters never even have to think about but like that’s exactly why i feel like i should do it even more?? making history type shit 🩷 representation matters so much and nobody with nf1 has ever seen themselves in a fighter before and that’s literally so sad to me 😭 so do u guys actually think this is a good idea or am i being delusional lol just wanna hear from people who actually get what living with this is like