u/miyology

i’m back in the hospital due to malnutrition and a bmi of 15, and they wanna do TPN for me but i’ve never seen or heard of it before. anybody been thru this?

does anyone struggle with pooping throughout the night? i have to use incontinence pull ups because of how urgent my bms are, but it’s to the point where i’m waking up multiple times at night just to poop, then i clean myself up and the cycle continues either 2 more times or 4 more times that night. i thought it was because of how close i ate dinner before bed (which rlly wasn’t that close), but i went to sleep hungry last night and was STILL pooping all night long. i have an appointment in a few days so im definitely gonna ask about this but im just wondering if anyone else has/had this issue?

after weeks in the hospital with this fuckass condition, i was deemed stable to go home!! has anyone else been hospitalized for this had like any issues transitioning from hospital to home? it’s kinda hard getting used to being less independent because i live with my family and gotta ask for help a lot but idk

with my case, when i cramp, i have 30 seconds until i shit myself, what do yall do to prevent or at least make this easier?? the only tip i hear is to wear adult underwear but i wanna hear other input

hiii guys it’s me again!! the doctors made something shake, so i began my first ever infliximab infusion in the hospital today. i don’t know what’s after this but i figured i’d update!!

has anyone been thru this here and can i get some insight/peace of mind? it’s kind of an emergency because my condition is so severe but im nervous yet willing to do it if it helps

i’m kinda venting out to you guys
i’ve been in the worst flare for pretty much two weeks now. no pain changes…. just tests and questions and diet changes and whatever else they keep throwing at me. i know being patient is part of healing but im in so much pain everyday and its gotten to the point where im crying daily because it feels like it’s never gonna end 😩 i can’t have many pain meds so they had me on tylenol but that shit works for twenty minutes so now they’re thinking about tramadol. tomorrow i’m scheduled for a flexible sigmoidoscopy so they can get a biopsy to test for infection, and today another ct scan on my colon so they can see if my colon has gotten worse or better (since i got transferred to this new hospital) but i think after tomorrow they wanna get me started on treatments because my inflammation markers are too high and they want me to get a little better before discharging me. they were talking about infliximab or remicade or something while im physically in the hospital but idk i hope this all gets better soon

(lowk just a vent post) they told me two days ago that i would get transferred after i pretty much begged and cried for better treatment because of the pain i was in for weeks while IN the hospital.. now they keep saying oh we’re waiting on a bed then ive been approved or whatever for a bed but they’re also saying that they’re waiting again?? no one’s communicating here n it sucks because i have to get transferred to get the proper infusions..

i’m in a flare rn and i’m just now getting out of the hospital. i have to go later today to pick up my prednisone from the pharmacy but i slept horribly last night.. i woke up every hour going to the bathroom to the point where my butthole is raw from the constant bathroom trips. even at the hospital my sleep was horrible, but i can’t take this anymore 😞 any tips like sleeping positions, meds, anything?? also would like to mention that my back, legs, and stomach were killing me last night too. pls help 😞

i’m a very snack loving person and i need to know if i have to get rid of that part of me 😞 what are you guys fav snacks to eat? i enjoy both healthy and “unhealthy” foods idk

hi everyone i’m new here, i’m 19F and just got diagnosed with ulcerative colitis! i don’t really know much other than what the doctors have told me so i’d like to know what the community could tell me😊 i’m willing to answer any questions i have answers to!!