u/mysteriousears

My husband is having FOLFOX chemo, on treatment 8 now. The 5FU is a 48 hour infusion and he is not able to tolerate food during those two days or the day after. He has lost 7 lbs since infusion and had a similar weight loss last round. I wake him every four hours for nausea meds. He can drink warm or hot liquids in small amounts.

On day 2 he also develops chest pain that is significant. He does not like to take the nitroglycerin and instead lays with heat and takes shallow breaths. I asked last appointment if he could see cardio-oncology about this side effect but was turned down and they just encouraged him to take the nitro.

Is this normal?? I had had chemo for breast cancer (NED now) and my team did NOT leave me to hurt. But maybe colorectal treatment is just harder and I have unreasonable expectations.

Would you mind sharing your experience with FOLFOX?

My GP was not comfortable balancing increased psych meds and I ended up with a behavioral health NP. Recently she disappeared from the hospital group website so I contacted GP regarding a refill. I asked if it was possible to go from 60mg to 80mg on Strattera. Turns out GP was on vacation and a MD covering call responded that he wasn’t even comfortable refilling the 60 and would definitely not recommend I increase.

And now I think I understand why the pharmacist wants to counsel me on serotonin syndrome every time I pick up.

(I am also on Prostiq that I cannot go without and a semi-high dose of Wellbutrin and low dose of Zoloft. I have ongoing severe SI. But my sibling made that choice and seeing the wake of destruction keeps me here, even if in rotting in bed all day. Yes I have a therapist.)

I had recently read on this sub that NPs overprescribe. I just wanted to tell someone because the response made me laugh/groan.