u/nerdiaz1

Recurrent Enchondroma?

This is my first Reddit post, but I can’t find many answers online, and I’m desperate for info. In 2021, I had an enchondroma in my toe that was surgically removed. Before it was discovered, I had chronic pain in the bone of that toe. In 2023, I had the same pain in that toe with the addition of heel spur pain. I saw a new podiatrist (not an enchondroma specialist) who took an x-ray and said it looked good. The tumor was not back. Since then, the pain has been intermittent. Last week I stubbed that same toe, and the pain was incredible. However, this time it wasn’t broken, but the x-ray technician wrote some confusing notes mentioning the possibility of a recurrent enchondroma. They mentioned it being the same as the 2023 x-ray but more pronounced than the 2021 post-op x-ray. I was referred to a specialist for final diagnosis who then ordered an MRI. Unfortunately, I have to wait 2 weeks to have the MRI and the wait is absolutely killing me. I’m embarrassed by how anxious and worried I am, but the recovery from surgery ended up being a completely traumatic experience for a number of reasons. As a single mom, I’m terrified of having to go through that again. It’s been a week and my toe is still very bruised, swollen, and painful, yet it’s not broken. I feel like I’ve been given contrasting information. Has anyone else experienced anything like this? I was under the impression that an enchondroma recurring was extremely rare and could be an indication of cancer. Any information or guidance would be greatly appreciated!

reddit.com
u/nerdiaz1 — 6 days ago
▲ 6 r/rarediseases+1 crossposts

Recurrent Enchondroma?

This is my first Reddit post, but I can’t find many answers online, and I’m desperate for info. In 2021, I had an enchondroma in my toe that was surgically removed. Before it was discovered, I had chronic pain in the bone of that toe. In 2023, I had the same pain in that toe with the addition of heel spur pain. I saw a new podiatrist (not an enchondroma specialist) who took an x-ray and said it looked good. The tumor was not back. Since then, the pain has been intermittent. Last week I stubbed that same toe, and the pain was incredible. However, this time it wasn’t broken, but the x-ray technician wrote some confusing notes mentioning the possibility of a recurrent enchondroma. They mentioned it being the same as the 2023 x-ray but more pronounced than the 2021 post-op x-ray. I was referred to a specialist for final diagnosis who then ordered an MRI. Unfortunately, I have to wait 2 weeks to have the MRI and the wait is absolutely killing me. I’m embarrassed by how anxious and worried I am, but the recovery from surgery ended up being a completely traumatic experience for a number of reasons. As a single mom, I’m terrified of having to go through that again. It’s been a week and my toe is still very bruised, swollen, and painful, yet it’s not broken. I feel like I’ve been given contrasting information. Has anyone else experienced anything like this? I was under the impression that an enchondroma recurring was extremely rare and could be an indication of cancer. Any information or guidance would be greatly appreciated!

reddit.com
u/nerdiaz1 — 8 days ago