u/o_ptimu_s

Had a seizure out of nowhere a few months back. Turned out to be a tumour in my left frontal lobe. The first scan lit up so much with contrast that they actually thought it was lymphoma at first. Biopsy, then surgery, to get the real answer.

Came back as an IDH mutant astrocytoma, grade 2. Resection was complete and the first post op scan looked clean.

Here’s the part that messes with my head. I had a brain scan years ago for something unrelated, and it’s since been confirmed the tumour was already visible back then and got missed. Still trying to make peace with that one.

Mostly hoping to hear from people like me. IDH mutant, grade 2, resected, anyone on vorasidenib or further along. How are you doing?