Muscle/nerve biopsy result time
I have never posted on here, mostly read other posts. I have been considered undiagnosable for about 2 yrs. I have severe chronic neuromuscular respiratory failure and am on a ventilator via niv 18+ hrs a day. I also have severe dysphagia, and weakness in my arms and legs worse in my left side. My drs highly suspect mito based on symptoms, bloodwork and genetic testing that came back as vus. A little over 2 weeks ago I had a muscle and nerve biopsy. My nmd pulmonalogist insisted on the biopsies to try and get a diagnosis for treatment or to give me a time frame.
I went today for my follow up and the doctor said my results were not back yet. This appointment was to go over the first batch of biopsy results. I was told I would get results at about 2 weeks and 4 weeks. The doctor said the lab called this morning to tell them that they didn't have any information for them. Is this pretty normal to not get the results back at a little over 2 weeks? All the neuro surgeon said was that they would contact me when they got results from the lab. I am a bit nervous now that it is taking longer to get the results.
Has this been normal for other people who got a muscle/nerve biopsy done? Did it take longer to get the results than the doctor anticipated? If it did take longer for you, was it because there was a problem with the specimens or because they needed a 2nd opinion or some other reason?