Some things on my mind
I often find myself scrolling in this community when I am lost in thought or overwhelmed with being at risk for HD. I am meeting with a genetic counselor later this month and I have decided I do want to get tested, which is something I had always been against.
I just feel like my life is on hold right now, I want so badly to be negative (duh) and I can feel how freeing that would be. I don’t know how I will react to a positive result. I really want to have hope for a happy life regardless of the outcome, but I struggle with this. My father was not happy, my childhood was not happy.
I try to remind myself that I am not my father.
This whole thing is just so hard, everyone has different life circumstances and challenges that they face, but HD just feels like it is stealing my life.
How do you all cope, how do you cope with the stress of upcoming testing?
And I am Sorry if this is insensitive, I do believe people positive for HD can live meaningful and positive lives, this is all just based on my own fears and life experiences.