u/purplewindo

▲ 25 r/ALS

Your opinion: Voluntarily Stopping Eating and Drinking, or VSED.

This is sort of an ethical question - I'm taking a natural path, meaning no meds, no bipap, no feeding tube, no ventilator. For months leading up to this point, I was planning to stop eating and drinking once it became no longer possible without a feeding tube. I assumed this would occur around the time that I could no longer use the bathroom independently. Now it looks like my legs, arms and torso will stop working before I stop swallowing... I'm thinking about stopping, eating and drinking when I get to the stage of immobility. Would you consider that​" cheating", i.e. dying before the natural course of the disease?

reddit.com
u/purplewindo — 6 days ago
▲ 6 r/ALS

Toes in pain

I'm still walking, but with two canes and leaning pretty hard forward so as not to fall. I get bad cramps all over but also in my feet and toes and they curl down. When I walk on them it's really painful. Any suggestions? Thank you.

reddit.com
u/purplewindo — 2 months ago
▲ 12 r/ALS

Your thoughts on excersise, particularly abs/core

A year ago I was 100% healthy. Now I can barely walk on my own and my right hand and arm are getting weak and uncoordinated. I'm getting zero excersise right now other than doing basic things in my apartment. My core is so weak I have trouble changing positions at night and getting out of bed. My legs are weak to the point that it's difficult to get of the toilet, can't pick up anything off the ground anymore. (Frustrating.) I don't know whether excersise will help or just wipe me out. I battle with fatigue. Have you done core or leg exercises? What's your experience like?

reddit.com
u/purplewindo — 2 months ago