scary episode the other day
hi, i’m new to this sub. i’m 27f, i’ve had isolated pvcs at a very low burden for about 4-5 years (maybe longer but only became aware of them around 21y).
however, in the last year they have gotten much worse. two years ago i had a mini stroke caused by a spontaneous artery dissection in my neck. this led to genetic testing, where i found out i have (unrelated to the dissection) a VUS on my RYR2 gene. i’ve ultimately had extensive cardiac work up and they think i don’t have CPVT but i still worry a lot about my pvcs.
about a year ago, i started getting ventricular bigeminy and couplets. i’ve also had several episodes of SVT that were started by pvcs and bigeminy. i went from having 1-2 pvcs every week or so to having almost 100 every day. this started after i got sick with some sort of virus (not covid) in october of last year.
i’ve been on a beta blocker since 2024. first metoprolol and i am now on propranolol 60mg ER which has helped to eliminate my SVT episodes and greatly reduce my PVCs but im still getting them.
i can always feel my pvcs. they feel like my heart is doing flips, it always makes me cough involuntarily and i can feel it jump into my throat.
i’m worried i had vtach the other day and i didn’t capture the episode so i know there’s no way to say but im just so anxious about it.
also, id say about 90% of my pvcs are triggered by positional changes (bending over, squatting, turning over, sitting down etc) or like laughing, eating, things like that.
i was at work the other day (im a barista). i’m standing at the register talking to a customer when all of a sudden i feel a pvc. i expected it to go away but then i felt a very hollow feeling in chest almost like sinking feeling. i felt a few more pvcs back to back, maybe bigeminy but i’m worried it was vtach. i felt extremely faint and i looked pale. i excused myself to the bathroom and by the time i got there the episode was over. my ekg on my watch by that time was normal rhythm and HR of 57.
has anyone experienced this before? i’m just scared. i messaged my cardiologist and he just said to hydrate and avoid caffeine. i only ever have like half a matcha at work but i will cut that out for now.
i’m just scared that im on the verge of SCA or something and idk how to cope.