Beginning to learn about GI issues in Marfan Syndrome
Can anyone point me to some good articles/blog posts or even your own anecdotal experiences on common digestive issues and better digestive management when it comes to Marfan syndrome? I'll be bringing it up to my doctor next visit, but I've got some major reading/processing issues and would really appreciate some help with getting to some useful info since search engines suck these days.
I've been blaming myself for increased issues with GI stuff (acid reflux even when I eat a small, healthy meal, stomach pain, food going right through me, feeling inflammation in the gut, increased gas) and the fact that I'm in my later 30s now, but I'm realizing this subject of how marfans effects digestion and nutrient absorbtion is something I'm severely lacking knowledge on. It's like my brain is already so full of knowledge on other crazy health issues from marfans and my other rare life threatening disorder shit that this topic has just totally not been on my radar all this time.
I would appreciate personal stories of things that have helped your digestion or what common issues I may not be thinking about, but I'm very aware that everyone is different and I will be pursuing seeing a specialist in a couple months. Thank you!