Did anyone here have a high MELD but otherwise feel fine before their liver transplant?
Hi all,
I'm 36 and working on getting listed at my hepatologist's recommendation at MGH due to my high meld.
I was diagnosed with ALD/Cirrhosis last March and have been sober since then. I've seen recovery in pretty much everything except platelets, INR and albumin. My albumin is improving thanks to an adjusted diet, but I digress.
Currently my MELD is 24, which I normally see people on /r/cirrhosis and doctors talking about how that is very sick and I get that on paper but it doesn't match my lived experience.
Has anyone who has been transplanted also been living a relatively normal life at a high MELD before their transplant? How was it afterwards?
For me I'm not worried about the procedure or recovery; I'm very dedicated to living and will be doing everything I can to maximize my new liver.
What I AM worried about is trading the illness I know for the one I don't that could make my life worse.
I'm also a bit miffed that I feel like I'm juuuuuuuuuuust barely going to miss the opportunity to benefit from breakthroughs that are currently in human trials.