Auntie to 9mo with strongly suspected Achon
Hi there!
My sweet, smiley nephew has his case currently being reviewed by CHoP, but we’ve suspected since he was still cooking, any the certainty only grows.
Since he is undiagnosed, for lack of a better term, my sister and her husband haven’t been in connection with anyone that can give them resources and advice. I’m more internet/reddit savvy, so I wanted to come here to see if anyone has any tips they would share to make my nephew’s infant hood safe and happy!
For instance, he gets lots of tummy time, but he always loved his walker/bouncer. Having researched Achon I now know that these curved/soft seats can contribute to kyphosis and should be avoided. Does anyone have any advice on this subject? Has anyone modified a bouncer or found one that is appropriate? Or is it definitely NO GO?
In a similar vein, in an effort to help him have sitting time, is there a floor seat that anyone would recommend? I’ve read that their spine/neck should be supported the entire length, and most of the seats (like Bumbo) only support the lower spine.
Any other advice would be appreciated while we’re in this waiting stage! Thank you in advance. <3