u/rbridge42

MRI Results

I have no idea why we've been so fortunate but we've just had our 3rd good MRI! The first two showed "dramatic improvement" and this one showed "stable" with no tumor.

There are still cancer cells and we know eventually they will stop being responsive to treatment, but I'm thankful for every day with the man of my dreams. Husband is 70, diagnosed Sep 2025, hyper methylated, left frontal lobe, partial resection, SOC, brief clinical trial Debio0123, so far 6 rounds of Avastin every 3 weeks with daily 100 mg tmz.

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u/rbridge42 — 3 days ago
▲ 23 r/braintumor+1 crossposts

MRI Monday

My husband (70) goes for a follow up mri on Monday. Diagnosed/surgery Sep 2025 with abbreviated radiation, tmz, clinical trial and now Avastin. He's been doing well but this past week he told me something feels "different." His BP began to rise so the BP drug was doubled (I know Avastin can cause this but there's been no issue with it for months until now).

We're able to meet with the neuro oncologist for preliminary mri results a couple of hours after the scan. I'm worried. The last 2 scans showed improvement but I know one day that will change. I'm terrified of his reaction to bad news.

I still remember early after diagnosis when he turned to me in bed and, from the depths of his soul sobbed, "I don't want to die!"... It was excruciating. How do I respond to that? How do I care for the man I adore? I'm hoping for another good mri. I'm hoping his story is one where the turn for the worse happens abruptly so he doesn't see it coming, he doesn't suffer, he doesn't fear. His grief and fear hurt me more than my own.

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u/rbridge42 — 4 days ago