Did your light sensitivity resolve after decompression surgery?
I, 37f, was diagnosed earlier this year after a very sudden bout of light sensitivity that was initially diagnosed as ocular migraines, but was then (after a series of CT scans and MRIs) found to be a Chiari Malformation and syrinx. Between diagnosis and decompression surgery, I was able to work with a series of accomodations (yay, unions!), a rx of Diamox, and by wearing a baseball cap, blue light glasses, sometimes sunglasses inside. My NS did let me know that the extreme light sensitivity was a bit of an uncommon symptom, and he wasn't sure it would resolve after surgery. It's only been six weeks since surgery, so I know there is still more healing to go, but the prospect of living under a hat for the rest of my life is bumming me the hell out.
My question is- for those who had severe light sensitivity before decompression surgery, did it resolve after? If so, how long did it take to resolve after?
I'm also open to any tips or light blocking ideas. I have a desk umbrella, my work is looking into getting me a tarp-esque set up because the flourescent lights are veryyyy hard on me. I watch TV on the lowest brightness, my computer screen is so low its gray-yellow, I have special sunglasses that block out side light, I am at my wits end for how to deal with this. Because the light sensitivty makes driving unsafe after I get triggered to the point of actual pain in my eyes, its led to a huge loss of autonomy and it's so frustrating.