What is on your loved one's death certificate as the cause of death?
My beloved husband passed away from CJD on May 4th. I received 10 death certificates that state the immediate cause of death was "diffuse encephalitis". At least 2 neurologists told me that he definitely did NOT have encephalitis, that he had CJD. Test results of spinal fluid sent to Mayo Clinic came back positive for CJD.
If this type of thing happens often, then the statistics for CJD must be way off. The certificate also states that time of onset til death was months. It was almost exactly 5 weeks from the first symptoms.
As a significant condition contributing to death they added "protein-calorie malnutrition". In about 3 weeks? I doubt it.
Who enters this information??? I have a call in to find out how to get this corrected. Has anyone else had a similar experience. This is just one more thing on top of everything else that needs to be done. It is holding up notifications to banks, etc. Not to mention trying to get over the nightmare of those 5 weeks and dealing with the subsequent heartache and grief.