I can’t tell if my symptoms are coming from my chiari malformation or long covid. Either way it sucks, does anyone else also have both of these? And POTS. So much dizziness & it feels like my ears are under water & visual snow plus anxiety. I think the heat is a trigger for me.
Does anyone else take opioid pain medication that triggers symptoms? If so which symptoms and what medication?
So idk what is causing this recent flare, but I’ve been experiencing leg weakness, internal buzzing sensations, anxiety is through the roof, swollen hands when I wake up, waking up out of my sleep in a panic, ear fullness, tinnitus, and visual snow. Please tell me I’m not alone in this, it’s been 3 going on almost 4 years in October since I’ve been dealing with this & im at the point of giving up. When will this end ? When I was pregnant with my youngest the symptoms subsided I thought I was free of this bullshit and I got no answers from why they went away while I was pregnant. Has this happened to anyone else??
Does anyone else have long covid symptoms as well? & does it also trigger your chiari symptoms??
I’m hoping someone can come on here and help me manage this terrifying symptom that I have, I get this feeling in my neck and it’s almost like I have the urge to jerk my head back it comes with waves of anxiety & just really scary. Can anyone relate? And if so how do you manage it
Hello, not so long ago in 2023 I was diagnosed with chiari type 1. I had a bunch of symptoms just appear over night after I had a high fever. I was sent in for a ct scan with thoughts of stroke but it turns out I just found out I had chiari. Fast forward to last year, I started getting other symptoms like legs jerking and weird feeling in the back of my throat & in the base of my neck. Does anyone else have these symptoms? I am going crazy trying to figure out if it’s chiari or something else wrong with me. These symptoms also can come with anxiety. Please let me know if I’m not alone in this 😩