u/shiningstar420

▲ 4 r/lupus

Covid + active flare

My wife tested positive for covid twice (home tests) and i tested negative both times. however she started having symptoms on wednesday night and i started having symptoms on Friday morning.

We scheduled lab testing through cvs to get an accurate result and i’m hoping that i will test negative again but im not sure if that’s what’s going to happen given the fact that im having symptoms. I looked up things that i could do to help if i do have covid and i heard of paxlovid but then i also read that it has to be administered within 5 days after symptoms appear but if i find out until monday (cvs has a day turnaround for testing i believe) im afraid it’d be too late to get paxlovid. (im also uninsured so that would also depend on whether i qualify for assistance or not).

I’m terrified and extremely anxious. I want to feel hopeful but it feels impossible. this feels like a nightmare. please help me with any advice or any bits of hope i could use. thank you

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u/shiningstar420 — 1 day ago
▲ 2 r/lupus

Pharmacophobia?

I have a fear of taking medication. This started when I was a teen after having bad experiences with side effects but I never realized how bad it was until I was diagnosed with SLE last year. I take medications to manage and I try to be on time but I just noticed that I have always dreaded taking them. I had a bad experience with jardiance last month and now that fear has become uncontrollable and unbearable which has been contributing to my overall health anxiety. I can’t take medications without sweating, crying and panicking.

I haven’t been injecting benlysta because I had a sore throat and post nasal drip but I was prescribed a medrol pack to help with the allergies causing this. I’m on my second dose day and I want to try injecting benlysta today but i’m terrified of any interactions happening with medrol or the other medications i’m taking (cellcept, plaquenil). I have contacted my rheumatologist but I’m thinking about contacting my pharmacist too. I’m unsure about what to do and i don’t know how to cope with this fear. Has anyone experienced this? Do you guys have any advice or tips to help? Thank you.

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u/shiningstar420 — 1 month ago
▲ 17 r/lupus

How do I control my health anxiety?

I have been officially diagnosed with lupus since september 2025 but my symptoms started almost a year ago. Since then i’ve been cruising through it, pretending that everything was fine and then my rheumatologist referred me to a nephrologist due to my kidneys leaking protein. I went to my nephrologist and she prescribed jardiance to help protect my kidneys. Long story short, after 3 weeks of taking it i was admitted to the hospital for severe dehydration caused by jardiance. I was discharged a few weeks ago and I have been dealing with horrible anxiety, I can’t eat anything without worrying about it worsening my health. my heart races and i can’t seem to get control of my panic. I was supposed to start benlysta injections the same weekend that i was in the hospital and unfortunately i have a mild cold now so i haven’t been able to start benlysta. I stopped taking jardiance and i am only taking hydroxychloroquine and mycophenalate and im worried about my health getting worse. I feel so powerless and anxious, I feel like im losing my mind and I can’t afford to get help since im uninsured and all my money goes towards my physical health. Do any of yall have any tips? Is this is a common experience? Any kind words would help. Thank you.

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u/shiningstar420 — 2 months ago