Hematologist says he has "no idea" what is causing my high platelets
(See previous threads of mine here and here for full context, including the comments!)
Quick Notes tho: 31F, saw hematologist back in January from PCP referral due to elevated platelets for the past 5+ years (now possibly going back 10+ years after finding more past medical records). Got bloodwork done in January (along with genetic testing) and bloodwork done last week (5/6/26).
-Triple Negative for JAK-2, CALR and MPL
-January:
CBC - WBC 12.01 and Platelet Count 463
ESR - 21
-May:
CBC - WBC 11.3 and Platelet Count 506
ESR - 18
Saw the hematologist today and after looking over the new results above, he told me he has "no idea" what is causing my high platelets.
He said a BMB is an option... But didn't seem 100% on board with doing it. He wants me to get my bloodwork done again in 3 months and see him for a follow-up to go over the results, if they are still the same then he might want to push for a BMB.
HOWEVER.... I recently stumbled across some medical studies from the National Library of Medicine about one of my other medical conditions, PCOS (now newly re-named to be PCOM aka polycystic ovarian morphology), and how these studies showed PCOS can be linked to having high platelet counts, high wbc, and chronic low grade inflammation. I told the hematologist I had a hunch these issues could be tied to my PCOS and I tried to show these studies to the hematologist but he ignored me and instead, used AI on his computer to search for "what is PCOS" and "PCOS with thromocytosis/high wbc" and said the AI told him it was "inconclusive".
I then mention to the hematologist that I am seeing my gyne next week, who I've seen for years and is familiar with my PCOS and I was going to share the medical studies with him. The hematologist then says "Let me know why your gyne thinks about these medical studies/PCOS being tied to your issues and we'll go from there".
And that's where I'm at currently. Not really satisifed or feeling OK with what the hematologist said or how he conducted himself (my mother came with me as support/an advocate and she was really not impressed) and will be consulting with my gyne next week and my PCP.
I am still not sure if I want to continue seeing this hematologist/do the bloodwork in three months and/or possibly do the BMB. The hematologist didn't even seem 100% confident with doing a BMB, citing how it would only rule out MPNs and other than that not provide any other guidance on what is causing these issues for me, PLUS how with my current insurance it would cost me a LOT of money.
I want to give a quick shout out to all who commented on my previous post, it was very comforting to see and hear from others.
Tldr: Looking for any advice/guidance on how to proceed.
As always, thank you for reading.