los angeles based support
hi everyone,
i have been trying to rule out hEDS for some time and have hit a wall. referrals from different doctors for various specialists have all been denied for not going to the correct route but i don’t have clarity on what the correct route would be.
i was seen by a rheumatologist who did rule out autoimmunes that they would treat but nothing has happened from there, really. this doctor and my pcp say they do not know any resources for me. my healthcare group for insurance doesn’t not have any specialists or geneticists that work with EDS or hypermobility within their network. i keep just getting referred to the EDS website which also isn’t helpful. i don’t see anything outside of PT or massage therapy in los angeles, which seems insane to me. does anyone know of providers i could maybe try that would also accept insurances? how do people get screened/diagnosed?
i have a ton of medical trauma from other conditions and have had to fight for care and to be taken seriously many times. i’m hoping to find a solution sooner than later so i don’t have to go through this again.
thanks in advance♥️