u/supersauceman32

Hey all.

Our ~2 year old has Cystic Fibrosis and is pretty pancreatically insufficient. He's struggled to gain weight most of his life. With a lot of effort, and taking cyproheptadine for months, he's now up to about the ~12th percentile for weight. However his care team (whom we trust) believes getting him significantly higher should help his pulmonary outcomes long term - so we're going down the route of a g-tube on their advice.

The surgical procedure with a kid this age, as well as the day-to-day logistics of care and cleaning indefinitely, have us feeling pretty anxious. Parents who've gone through similar with their children, what advice do you have? What helped you? What do you wish you knew going into it?