I'm newly diagnosed and looking to build myself a travel bag with "must haves" to bring when I leave the house.
I'm a 32 year old woman who has the fun gastrointestinal features and bladder irritation as well.
What items do you keep handy?
Just got diagnosed today, but not entirely surprised. What are some of your tips for managing this condition? Things you wish you knew, from "this type of pillow helps" to resources for understanding this diagnosis.
Rheum was on the fence for psoriatic arthritis or ankylosing spondylitis since I have musical tendonitis, but since I do not have psoriasis or dacytlitis (just some swelling but it's not showing on sonograms) and more axial involvement he diagnosed AS. Though he said PsA is not off the table.
My biggest issue at the moment is SI Joint inflammation and hip cramping/pressure. We're looking into my shoulder pain too...they just hurt all over--but are particularly near my rotator cuffs and make my cervical spine hurt, as well as make my chest/back pull and knock my breath from me. I sleep on my side because I cannot stay on my back or I wake up drowning in nasal drip/have fitful sleep, so this doesn't help. (Any way to ease this?)
We're going to try Humira since I also have hidradenitis suppurativa. I've never used an injectable before so I'm a little nervous, don't love the idea of doing it myself...
Tips?