Vacation with IgAN
Hello IGaN warriors! My son has been battling this for two years and we are heading to Florida for our first “big” vacation since his diagnosis at 9. He started out rough and was at one point on 17 medications in the morning, and now he is thriving and considered stable. He plays 4 sports and is very active, even though he is in stage 2.
He is currently on Filspari and Farxiga, and is no longer immunocompromised due to him coming completely off of those a bit after his 10th birthday. We generally are good about eating meals at home (my wife has celiac disease) or cooking when we travel. We are possibly going yo go out to eat twice in this trip and let him live a little. He has blood pressures around 100/60, and he is great at water intake. Just want to hear from those who actually live with this and not chat gpt and those who don’t have a clue. I just want him to have a “normal” childhood, which for the part he is having now.