u/unitedinanger

My roommate attacked me today and I realised an accessible place with a violent roommate is still safer than going to any inaccessible one

tldr; my roommate attacked me and I realised going to any hotel is can be more harmful than my room I know to be accessible

My roommate attacked me today and I realised an accessible place with a violent roommate is still safer than going to any inaccessible one

I live with a roommate who knew I am disabled from the initial flat viewing. I paid in advance, my assistants cleaned for me and her, I never caused issues. Every month she goes into a violent state of trying to get my attention out of boredom. She disabled me by loudly (over 90 db) playing music, burning candles that give me migraine, being sick and not masking. I physically can’t react then the flat quiets.

Today, she knocked on my door (a door knock impairs me for three days) and started yelling demanded I go and buy something for the kitchen. My assistant already transferred money for it. I managed to stand up holding a door frame and speak, and got it in a video – it’s on my Instagram stories.

I was due to move out at the end of the month and realised going to any hotel is can be more harmful than my room I know to be accessible. I do not have enough for September assistance and am worried I have to stay at a hotel if it happens again. Please support me if you can:
https://www.paypal.com/pool/9qtebEEIiA

instagram.com
u/unitedinanger — 1 day ago

Very severe alone — and I cannot afford an assistant

tldr; alone with very severe without daily assistance – a fundraiser

I am beyond the point where I can reach for help by texting – typing and using screens hurts

This fundraiser is all the money I have to survive across any accounts and I do not have enough for September rent and assistance with food and hygiene
— that is well before any paperwork or medical needs can be met. I do not have accommodations like noise cancelling headphones or even an eye mask right now, just my dark room. Any message to my online assistant to order anything online is a struggle requiring pushing myself

I do not have familial help, my parents do not even know I am disabled – and I have been severe and worse for over four years. I have lost most friends to this illness and prolonged inability to communicate

Please support me if you can
paypal:
https://www.paypal.com/pool/9qtebEEIiA

instagram:
https://www.instagram.com/p/DbTbHPQl\_bx/?igsh=ZTRhZDloamVxa2gz
tiktok:
https://vm.tiktok.com/ZGdxPTMMx/

u/unitedinanger — 7 days ago

Asking for help on Severe ME Awareness Day

tldr: asking for support
tw: mention of SA

The support group I had following SA and the people I asked for help after treated me like an easy pray to meet their own needs. Abusers protect abusers. I declined to very severe. I am completely unable to tolerate presence and cannot communicate with more than one person within several days. Everything causes a crash

Last week I ended up without any food, drinks, or means for heat control during a heat wave when my room was 40 °. My heart rate was over 120 bpm lying down, I had opened the last bottle of Huel, and managed to respond to the only person who offered help. With the money donated, I hired one part time assistant and ordered a ventilator before the temperatures will go up again next week

I need help with various small online tasks that are still critical to survival, and with sharing the fundraiser

https://www.instagram.com/p/DbTbHPQl\_bx/?igsh=ZTRhZDloamVxa2gz

https://www.paypal.com/pool/9qtebEEIiA

reddit.com
u/unitedinanger — 12 days ago

Help establishing a support group

tldr: if you can devote some time and energy to helping me establish a support group please reach out

I need help establishing a support group for safe keeping, arranging carers, etc. I have posted several times very urgent requests for help and only one person reached out to help me stabilise. I am afraid f deteriorating again. I am extremely severe in communication, screen use, and speaking — I won’t be able to arrange and hire help alone. One message to a potential carer crashes me for two days.

If anyone has any capacity to help with any parts of arranging care, please reach out.

reddit.com
u/unitedinanger — 17 days ago
▲ 36 r/cfs

Very to extremely severe without assistance, need help sharing a fundraiser to afford assistance (not fundraising here)

I am extremely severe in terms of screen use and texting, and this post is the only thing I can write today. I am pushing myself. I made a fundraiser – again, not fundraising here – that needs to be shared for me to afford care. I cannot message ME pages or people myself. I cannot sit upright, or reach food by myself, or place delivery orders and won’t survive without help.

If anyone is mildl enough and can message some ME Instagram pages, that will be life saving. Thank you in advance

reddit.com
u/unitedinanger — 23 days ago

Very to extremely severe - Asking for help - Fundraiser created

tw: SA

tldr: instagram fundraiser created to afford personal assistance

I am getting closer to extremely severe and need help fundraising for assistance. I cannot look at screens aside from several minutes a day, which are not enough to arrange care. I currently do not have any PA and continue to decline. I don’t have any other support, and by that I mean unless I organise it now – no one is coming. I can no longer place food orders by myself.

Here’s a link: https://www.instagram.com/p/DbTbHPQl_bx/?igsh=ZTRhZDloamVxa2gz

from a previous post as I cannot type:
I have rapidly declined following an SA by a caregiver in February and spent all of my money on recovery and treating an associated infection. I came public with the SA and saw how communities are eager to ostracise survivors. Despite the health I lost trying to protect others, the perpetrator still works with disabled people, and I declined to extremely severe. I currently do not have any help and am declining by the day.

Any support, no matter how small, would make an impact. Thank you in advance.

reddit.com
u/unitedinanger — 23 days ago