Can someone give me some hope for the future?
My spouse and I have twin one year old boys - one with DS and one without. I love our life. The first two weeks or so after finding out that our son would have DS were so so hard. I honestly blocked out a lot of it. But after that initial period, life has been awesome. We had a NICU stay that really took it out of me. But honestly, we came out pretty unscathed and our son is pretty darn healthy. Just a few minor things such as a cardiac condition to watch and a gtube. Most of the time I don’t really even “notice” the DS anymore. To me, he feels just like our other son. They are two individuals. But I still find myself plagued with anxiety probably once or twice a week, usually at night before bed, about the future. I am so saddened by the thought of dementia. In a way I feel such guilt. I don’t want this for my son. It feels so cruel. Does anyone else relate? Has anyone found a way to constructively move through the feelings of fear and sadness?