u/veggieslut_

husband newly diagnosed

Hi everyone! My husband just got diagnosed with severe UC about a week ago. He’s been in the hospital for 2 weeks now. His flare up started about 3-4 weeks ago. He’s barely eaten throughout that entire time. He’s been able to hold down some Ensure protein drinks and some blended up chicken soup the past couple days. They’ve had him on 40mg steroids twice a day for about 4/5 days now. The steroids are not helping as much/ as fast and the doctors were hoping so they’ve been discussing starting him on Infliximab but they haven’t yet because he’s had consistent fevers since a few days after being admitted into the hospital. They’ve had him on antibiotics and have done numerous tests to cancel out infections. Everything comes back clear. They are wanting to figure out what’s causing the fever before they start him on Infliximab. Has anyone else experienced fevers so often during a severe flare? His fever hit 105 the other night. Could the fever be caused by the severe inflammation? His pain hasn’t subsided. He’s been reliant on pain medication. This has been extremely hard to watch him go through. his symptoms have slightly subsided from how they were when we first got to the hospital. and the inflammation hasn’t subsided at all. there was a surgeon who came by to talk to us about the possibility of my husband needing to get his colon removed if they can’t get the inflammation under control. i’m hoping and praying that they can start him on the Infliximab soon and that it actually works. i’ve been reading through this subreddit and doing research to be as informed as possible. if anyone has any advice/similar experience/just kind uplifting words please feel free to share!

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u/veggieslut_ — 18 hours ago