u/vyvanseenjoyer

Looking for guidance

Let me preface this with the fact that I know how annoying these 'do i have scleroderma!?' posts are. I've waited a while to make a post and have been thoroughly evaluated w/ copious blood work.

Long story short: 24y/o male, developed Raynauds and visibly enlarged/hemorrhaging capillaries in my nailfolds 3 months ago. No other symptoms. Perfectly normal CBC, two separate results of ESR 2mm/h & CRP <3mg/L (one in mid Feb, one last week), 3 negative ANAs (via IFA), AVISE panel with 50+ antibodies on it all negative. My capillaroscopy was 'nonspecific, possibly early scleroderma pattern'.

My rheumatologist says at this point it's likely that I have some sort of benign microvascular fragility that is causing the Raynauds and enlarged/hemorrhaging nailfold capillaries and scheduled me to come back in 6 months to reevaluate.

Are there any other tests that can offer more information? I'm generally an anxious person and would love more reassurance than 'probably nothing, let's wait and see', though I understand that might be the only option.

reddit.com
u/vyvanseenjoyer — 9 days ago