u/wanderer7289

Post-transplant GI Issues

I had my transplant on July 22. A little

over two weeks later, I started experiencing nausea/vomiting, diarrhea, and cramp-like abdominal pain. Nausea/vomiting went away more or less within 48 hours. But diarrhea and abdominal cramps persisted. The doctor ordered stool test and the test came back negative for any parasites. So it was probably due to Cellcept. And my doctor

has changed the prescription to Myfortic. I have not received Myfortic from the mail order supplier yet. Hopefully that will do the trick and I will feel better.

Has anyone else had to switch to Myfortic because of GI issues? What changes did you make to your diet while you were having those issues? Please share your experiences.

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u/wanderer7289 — 5 days ago

Going Out In Public Post-transplant

It has been 13 days since my transplant, and I am taking extreme precautions around others. Even at home, I wear a standard face mask when near people. When going out, I wear a KN95 mask in the car, upgrading to a 3M N95 when visiting the hospital or other healthcare facilities. I also apply sunscreen daily whenever I go outside during the day.

I am curious: how long after your transplant did you return to public spaces? By this, I mean activities like grocery shopping, using public transport, flying, or visiting movie theaters and concerts (all while wearing masks, of course). I have not experienced any adverse reactions to my medications or other issues so far. I received a deceased-donor kidney that was preserved on ice; it has been slow to start functioning. While my lab results are trending in the right direction, the progress is very gradual.

I am not asking for medical advice, as I know every individual is unique and I should consult my care team for personalized recommendations. I am simply interested in hearing about others' experiences.

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u/wanderer7289 — 16 days ago

Path to recovery post-transplant

I am 54 year old male ESRS patient and I got a call from the hospital out of the blue on Tuesday night that they had a kidney match for me. I had only been active on the waitlist for less than 2 years. And I was not expecting a call so soon as I was told it would be 3 to 5 years before I would get a call. Naturally I was shocked and after my family and I recovered from the shock we headed ro

the hospital and underwent the transplant surgery on Wednesday morning.

I am writing this on Saturday morning, the beginning of Day 4, from the hospital bed. The surgery seems to have gone well. I was never in excruciating pain after the surgery. I did not have push for bolus

at any time. Now I am only on Tylenol. Foley catheter was taken out yesterday morning. I was taken off liquid diet at

the same time. I have been walking around the hallways twice a day since Day 2. It was easier yesterday. I received a deceased kidney that was on ice. Does not look like the kidney has fully woken up yet. I am making a lot urine but eGFR, BUN, and creatinine numbers have not improved much yet.

I would like to know what should I expect on my road to recovery? I have been told

to take utmost precautions to avoid crowded area and most contacts with the outside world due to infection risks. I have been told to put on sunscreen every time I go out and wear masks (I have already ordered N95 masks). I am good at managing my diet. And I understand

what to avoid and what to eat more.

I am concerned more about my activities. How long after transplant do I have to avoid socialization. I am not a very social

animal but I do like to go out in public (like grocery shopping, to the movies, etc). I had a very much anticipated rock concert I was planning on going to on Monday which is now out of the question. I was wondering if I can go to their tour stop in Austin, TX in October. I would have to fly there. Also, there is a movie coming out in December that I want to go to. Can I go to the movies by December?

Another factor that worries me is weight gain. I was already overweight but not obese. My BMI was around 28. After transplant there has been a rapid weight gain - I have gained more than 15 lbs in 3 days. I am sure it is because of fluid retention after being on complete liquid diet. But now that I am supposed to drink a lot of water post-transplant, will I gain a lot of weight? How did you all manage your weight gain?

I am thankful for being able to receive a kidney so soon and so unexpectedly. However, I was really anxious on my way to the hospital on Tuesday night- not because of surgery (for some reason, I am never scared of surgeries) - but anxious of the abrupt change in lifestyle after the transplant and what my road to recovery would entail.

Any tips and suggestions would be welcome. I have read a lot of personal

experience on reddit. I would be grateful

if some of you could share yours over here too. Maybe that would ease my mind.

Thank you so much.

reddit.com
u/wanderer7289 — 26 days ago