Hello everyone,
I’m curious to know if any of you experience a “Lhermitte’s sign” with FND.
An electric shock sensation/pain running along the spine that radiates into the legs (or not), occurring consistently and reproducibly every time the neck is bent forward?
Thank you for your responses.
Hi everyone,
I’m 30F and have been dealing with neurological symptoms and diagnostic uncertainty for almost two years.
My symptoms started about a month after a severe infection and included numbness, walking difficulties, visual problems, severe photophobia and other neurological symptoms. Brain and spinal MRIs have remained normal.
After a later hospitalization for a severe neurological episode, I was diagnosed with FND. However, about a month later, I tested moderately positive for anti-MOG antibodies, which reopened the question of whether there could be an autoimmune neurological condition involved.
Since then, I’ve had very conflicting opinions from doctors. Some feel FND explains everything, while others have felt that the neurological history and anti-MOG result deserve further investigation.
I’m not asking Reddit to diagnose me. I’m mainly looking for people who have experienced long diagnostic uncertainty after being diagnosed with FND, especially anyone whose diagnosis was later reconsidered.
The diagnosis they've accepted is still the FND, without wanting to reconsider the issue despite the differing opinions. I'm uncomfortable with that.
I'm reposting here because the FND group deleted me
Did anyone eventually get a different diagnosis? Or did you eventually confirm that you had FND?
How did you find a doctor who was willing to reassess your case?
I’m feeling very lost at the moment and would really appreciate hearing about other people’s experiences.
Thank you ❤️