u/writeyourownfable

Hey guys,

I'm really struggling after our NICU stay. My first child was a NICU baby 11 years ago and due to our experience (we both almost lost our lives) I was diagnosed with Post Partum PTSD among other PP conditions. My twins were born at 33+3 and had a lengthy NICU stay. Twin A left after 4.5 weeks but Twin B was diagnosed with NEC and stayed for almost 6.5 weeks. Every visit was super hard due to the experience I had 11 years ago. In our NICU stay this time we saw quite a few babies lose their fight and it brought back flash backs of what happened the first NICU stay. We almost lost Twin B due to her NEC, but thankfully her treatment was successful and she is doing well and at home now. My question is does it ever get better? Every time I think about our stay I cry and have a panic attack. How did you overcome the trauma of staying in the NICU? I have a therapist but I haven't been able to speak with her since twin B came home. Any input is helpful and appreciated.

Hi all. My twins were born at 33 weeks and 3 days. At one week old Twin B was diagnosed with Necrotizing Enterocolitis (NEC) Stage 2. She did not require surgery as the antibiotics and treatments healed her within a week.

They are now 12 weeks old. I'm curious as to if anyone had this diagnosis and how their child's development progressed. Did they experience any developmental delays?

(Some information on me. I work in education with the severely developmentally impaired. Most of my students are diagnosed with Level 3 Autism as well as other conditions. I have a child of my own with Level 1 Autism and ADHD and another child with ADHD. I'm no stranger to developmental delays both professionally and personally. I'm just trying to see what to possibly expect after a diagnosis of NEC.)

Thanks in advance.