Newly diagnosed and feeling very downtrodden
Just spent the past couple days in the hospital after going to the ER with head pain so severe I'd been up for 2 days because I couldn't stand for a pillow to touch the back of my head. I went in after my face started drooping and could no longer walk unassisted because my entire right side became so weak. CT Perfusion scan and Brain MRI were both normal.
I've suffered from "regular" migraines since I was in a bad car accident as a teen. I guess they have now evolved into this exciting new territory. 😒
I am super limited on meds I can take. I cannot take any kind of NSAID because I have a platelet disorder that keeps my platelets very low all the time. They've been consistently in the 40-60K range for a while now. I have EXTREME sensitivity to pretty much all meds, even OTC. They made me make a decision on what I'd allow them to give me before discharge. I absolutely hate Compazine, so I refused that. It makes me immediately go berserk. I agreed to a cocktail of Tylenol, 12.5mg of Benadryl IV, and 12.5mg of Phenergan oral. Just that half dose of IV Benadryl sent my body into immediate vomiting, redness, uncontrollable shaking and crying, followed up by major aggression and agitation. This is what nearly any drug I'm given IV does to me.
The neuro I saw at the hospital was not impressive, but he called in 2 different doses of the injectable Emgality after telling me my insurance will probably refuse it. 🤷🏻♀️ I am pretty terrified to inject anything into myself knowing how badly I react to meds. Either I go off the deep end crazy with seeing flashing lights and brain zaps, become extremely aggressive, vomit, or have redness, itching and throat swelling with just about anything.
I know its a long shot to find anyone out there that is as sensitive to meds as I am, but I'm hoping someone could offer me some advice on what has worked for these types of migraines for people who are REALLY sensitive to everything.