Update/possible EDS

I was coughing for 2-3 months strait back in December. I ended up breaking the cartilage in my chest. I have 5-6 ribs that have not stopped dislocating and it doesn’t help that I also had gallstones at the same time.

I ended up doing PT for a few months and stopping because I needed to get my gallbladder removed. I thought I was getting better after a few months of rests, after the surgery.

Summer time rolled around. I tried normal activities (only 2 time each) like, paddle boarding and dancing. Both of these activities dislocated my ribs again. I have dislocated mostly on my right side. Floating ribs, and all the way up to my sternum. They haven’t gone back or returned at all. If anything it only got worse. I have got them to settle and stop shifting as much tho.

I talked with my doctor a few months again and I thought I’d let her know I’ve also dislocated my knee, jaw, and shoulder. I can also pop my hip out of place. She’s decided that I have hyper-mobility and will be testing for EDS soon. We believe I have EDS based on all the underlying symptoms I’ve had for years.

Feel free to ask questions or give advice while I’m on this journey. Thank you

*Picture in comments*

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u/zelggiuqs — 12 days ago

First Nation descendent

I am a first nation descendent. I am recognized in Alaska, despite my native ancestors descending from Canada. My tribe sought refuge in Alaska. For the past year or so I’ve been looking into seeing if it is possible to become Canadian citizen through descent. I hadn’t realized that they had changed the laws so recently. Does anyone here know what that would look like? Would I stop being recognized in Alaska as a tribal member? Would I be able to claim my tribe in Canada? Is it possible to have dual citizenship through each tribe? I think a lot of what’s been holding me back is I don’t know what it would do to my current tribal status.

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u/zelggiuqs — 2 months ago

My ribs have been dislocating since DECEMBER

I (29f) have a previous post explaining my slipping rib since December. Since then I have been doing physical therapy. I was doing PT, which I thought was helping. In april i found out that I needed to get my gallbladder removed. Everyone was telling me I’d feel better once I got my gallbladder removed. Long story short. I got my gallbladder removed in May. I haven’t been able to do Physical Therapy since surgery. I’m just barely off of my weight restrictions. I wanted to start getting back into physical therapy but I haven’t. I went paddle boarding a couple of weeks ago. My physical therapist said that if I can paddle board for hours, I’m probably okay and don’t need PT anymore. It’s been 2 weeks since i paddle boarded for the first time. I tried camping for one night and paddle boarding once since then. My ribs are sharply moving around. Poking out of my chest, poking inwards in multiple places. It’s back to where it was before and it feels like it’s only getting worse. It’s pinching my lungs at times and the pain is wrapping all the way to the back too! Sorry I don’t know the rib names. So with one rib I was mostly dislocated around the front sternum area, right under the breast (that’s the one that sticks out), now I can feel it reaching all the way into my back. My other 2 are my floating ribs and they disappear inside of me. I can’t wear pants that are tight, I can’t sit certain ways. It’s sore to touch. Also, when I flex my abdomen, it hurts too.

Anyway, I’m starting to feel discouraged. Even if I stopped PT for a while, I feel like 7 months is enough that it shouldn’t be doing that anymore. PT or not. I’m worried there is something more wrong with me. I feel like I can’t do anything.

I need encouragement. Advice. Anything please, I’m starting to feel helpless. I have all this energy and I want to do things but my body can’t do anything.

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u/zelggiuqs — 3 months ago