Sudden severe vertigo with AS possible BPPV but I can’t do the usual maneuvers
Hi everyone,
I have long-standing Ankylosing Spondylitis with significant spinal fusion and very limited spinal mobility.
A few days ago, I developed a cold/cough and took Cefuroxime 500 mg, which I had used previously. A few hours later, I suddenly developed the worst dizziness/vertigo of my life. The room felt like it was spinning and I vomited. The severe dizziness improved after vomiting.
The next day I took Cefuroxime again, and around 2 hours later the dizziness returned. Because of this timing, I suspect Cefuroxime may have triggered the initial episode, although I know I can't confirm that.
Since then, the vertigo has continued. It is much better when I sit still and look straight, but movement, getting up, walking or turning brings the spinning sensation back. I also have a strange sensation around my left ear, although my hearing is completely normal.
I saw an ENT who suspects a positional/vestibular cause, possibly BPPV. However, the usual Dix-Hallpike/positional testing couldn't be properly done because of my spinal fusion and limited mobility.
I've also been prescribed Vertin (betahistine), which has given me some improvement, but the movement-triggered dizziness is still there.
The biggest problem is that I cannot lie flat or move my spine normally, so I can't simply do the usual Epley maneuver. I tried a positional exercise once and it actually made me vomit.
Has anyone with AS/spinal fusion experienced BPPV or similar vertigo?
If yes:
- Were you able to get diagnosed without the standard positional tests?
- Did you use a modified maneuver because of spinal limitations?
- What treatment/exercise worked for you?
I'm mainly looking for experiences from people with AS and significant spinal mobility restrictions.
Thanks!