Hello fellow necrosisees,
I was recently diagnosed with AVN in both my hips however the damage is very minimal and orthopedic has suggested against doing core depressions at this point.
The assumption is that heavy, chronic drinking was what caused this. My question is, how fast does AVN progress if I keep drinking? Will it repair if I stop? Is there any reversing or completely halting the disease?
My partner (30M) has Avn in both hips. Hes has the diagnosis over a year now. Hes is stage 3 so he’s not a candidate for core decompression anymore just hip replacement. He scheduled his surgery but now we’re second guessing on if it’s too early. The ortho doc kept saying to hold on as long as possible before getting it done.
What made you decide it was time?
Also, he’s usually very athletic. Those that are too, how are running/gym activities post THR?
Found this and nothing else is helping. Seems a wee bit less pain after 2 days. Who knows, but it can’t hurt. I’m simmering the root slices & drinking the tea.
Hi everyone,
I'm 29 years old and I've been diagnosed with avascular necrosis (AVN) in both hips.
This Friday I'm scheduled to undergo surgery on my left hip. My surgeon will perform core decompression with a bone graft taken from my pelvic bone (iliac crest). During the same operation, he will also perform a stem cell injection into my right hip to try to slow the progression there.
I'll be staying in the hospital for 2 days after surgery and, if everything goes well, I'll be discharged afterward to continue my recovery at home.
My surgeon strongly believes I'm still too young for a total hip replacement and doesn't think it's the right option yet because there is no significant collapse of the femoral head.
To be honest, I'm terrified. My biggest fear isn't the operation itself—it's the pain and the recovery afterward.
I've read so many different stories online. Some people say recovery was manageable, while others describe weeks or even months of severe pain and a long period of non-weight bearing. Reading those experiences has made my anxiety much worse.
Right now my pain is usually around 1–2/10 while resting, but increases to about 5–6/10 when walking. I'm also overweight (around 105 kg) and I used to drink alcohol heavily, but I've decided to quit completely because I want to give this surgery the best possible chance of success.
For anyone who has had core decompression, bone grafting, or stem cell treatment for AVN:
Any advice for preparing before Friday or for those first days after coming home would also be greatly appreciated.
Thank you for reading. I'm honestly very nervous, and hearing real experiences from people who've been through this would mean a lot.
Cheers yall.
I was diagnosed with bilateral AVN 19 years ago now. Ive had my right hip surgery (total hip replacement surgery) — 3 months after having a c-section @ 25 years old.
—i was in excruciating pain 24/7 for 3 hears before i finally had the surgery. I wasnt sure how i would feel after surgery considering none of the doctors i had seen in that time was willing to help figure out a solution. The day i fell down due to my hip giving out i was carrying my 3 month old daughter & it just broke. Went to the hospital, transfered to a bigger hospital, then sent home for 4 days until the specialist was able to perform the surgery. Rit was supposed to take about 4 hours, but i had pieces and chunks of bone that had broken they had to take out so time doubled. Waking up i was in a LOT of pain, but a few hours of twerking the meds i got some relief. It took me about a week before i was walking pain free, but the surgery worked!! After years of day dreaming about before AVN, i was pain free in my right hip!
Unfortunately, since i was diagnosed with bilateral AVN that was only half the issue. 13 years post op, im now waiting on the 2nd total hip replacement. This time - the hip pain is worse.... hopefully ill be able to have surgery soon & get back to my normal lifem
I’m a 49F and had AVN in my left hip diagnosed this time last year. I was very symptomatic, but I needed to keep working. The inevitable happened and the pain became intolerable.
In mid-March I went on STD at work with surgery scheduled in April. I had the surgery and the top and bottom of my incision wouldn’t heal… on 6/4 I went back in for a washout and replacement of the head and liner. I left with a wound vac and a picc line, and I’m currently on IV antibiotics.
Pain-wise it’s been great since my revision. Unfortunately I know what an infection feels like, which was painful and my hip clicked. I’ve gained a TON of weight and I’ve been on rest trying to get the new wound to close. I’ve had a wound vac since 6/4, there’s a very small area still draining, so I’m continuing in the wound vac for two more weeks.
Has anyone been through something similar? I really need to be able to start moving my body because I have NO stamina and I’m very stiff.
Has anyone had good luck with getting their core strength back using exercises that don’t require me to be on my feet?
I’d also love some advice or insight on how to get rid of the stiffness, I have no flexibility anymore either.
TIA, all advice is appreciated!